Why do we collect your personal information and what types of personal information do we collect?
We collect personal information about visitors to our website if you wish to gain access to information about clinical studies (“Visitor”), in order for us to authorise you to access information about clinical studies (“Access”). If you are a Visitor we will collect your personal information including your name, email address, phone number and postcode (“Visitor Information”) in order for us to provide you with the Access.
As a Visitor, when you wish to register your interest in participating in a clinical trial detailed on our website (“Participant”) we will collect personal information about you in order to provide you with our services, including the following:
- Connecting you with clinics providing clinical trials (“Clinic”);
- Sending you material about clinical trials that we believe may be of interest to you;
- Managing your relationship with a Clinic;
- Communicating with you about your experiences with us and/or the Clinic;
- Generating lists, reports and/or analysing your personal information for the purposes of increasing your chances of involvement in future clinical trials and other treatment activities;
- Assessing your suitability for the clinical trial you expressed an interest in and any other or future trials we believe may be of interest to you, and
Providing access to the latest health research and treatment news and information, together the (“Participant Services”).
If you are a Participant we will collect your personal information including your sensitive/health information in order to provide you with our Participant Services, including the following (“Participant Information”):
- your name
- your email address;
- details about your medical conditions, including the duration of the conditions, the medication you are using and whether the conditions have been diagnosed by a doctor;
- details relating to your suitability for clinical trials, including allergies you may have; and
- details of other medical conditions you may be interested in.
We also monitor customer traffic patterns, site usage and mailing list statistics to help us develop the design and layout of the website and mailing list. We may also use the information we collect to occasionally notify you about important changes to the Web site, new services and special offers we think you’ll find valuable. If you would rather not receive this information, please notify us. Make sure to notify us for each account or e-mail address you have left with us.
If you are a Participant who is contacted by a Clinic, we may also collect additional personal and sensitive/health information to better provide you with the Participant Services, including the following (“Clinic Information”):
- your eligibility for any of the clinical trials conducted by a Clinic; and
- your participation in a clinical trial conducted by a Clinic.
Where you complete an enquiry on behalf of another person, we will also collect personal information about you, in particular your name, email address and phone number (“Nominee Information”). We collect this information in order for us to contact you in connection with the provision of Participant Services to that other person [and for the purposes of effectively undertaking clinical trials].
How do we collect personal information?
If you contact us via the “Contact Us” facility on website or are a Visitor, we will collect your personal information and the Visitor Information directly from you. If you are a Participant, we will collect your Participant Information and/or your Clinic Information directly from you and from any Clinics for which you enquire about a clinical trial.
Who do we disclose personal information to?
If you are a Visitor or Participant, we may disclose your Participant Information and/or Clinic Information to third parties including the Clinics for the purpose of facilitating the Participant Services and performing one or more of our functions or activities.
Where you complete an enquiry on behalf of another person, we may disclose your Nominee Information to third parties, including the Clinics, for the purpose of facilitating the Participant Services and performing one or more of our functions or activities.
We may also use or disclose any of your personal information described above for other purposes and/or to other persons as required or permitted by law.
We may also disclose your personal information to third parties contracted to Optimal Clinical Trials for one or more of the above purposes.
The security of your personal information is important to us and we take reasonable steps to protect the personal information we hold about you from misuse, loss, unauthorised access, modification or disclosure. However, data protection and security measures are never completely secure and, despite the measures we have put in place, we cannot guarantee the security of your personal information. You must take care to protect your personal information. You should also notify us as soon as possible if you become aware of any security breaches.
Our website may contain links to other websites. We do not share your personal information with those websites and we are not responsible for their privacy practices. Please check their privacy policies.
How can you access or seek correction of the personal information we hold about you?
We take reasonable steps to ensure that the personal information that we collect and hold is accurate, complete and up-to-date. However, we rely on you to advise us of any changes to your personal information to help us maintain accurate, complete and up-to-date information. If you wish to know what personal information, we hold about you or would like to request a correction to the personal information that we hold about you, please contact us via the contact details set out below. In order for us to respond to your request, you will need to provide us with your full name, email address, date of birth, address, mobile phone number and a description of the information you wish to access and/or specify the manner in which the information we hold is inaccurate, out of date, irrelevant, incomplete or misleading and how it should be amended.
We are committed to protecting your privacy. We use the information we collect on the site to make registering your interest for clinical trials possible and to enhance your overall online experience.
Tell Us that You Think
Optimal Clinical Trials welcomes your questions and comments about privacy.
Please write to us at PO Box 47476, Ponsonby, Auckland 1144, New Zealand